At the age of three, Phoebe was rushed back to hospital, suffering with pneumonia and apnoea episodes.
Following a six-week stay in Bristol Children’s Hospital, the family were dealt another devastating blow.
Phoebe had been diagnosed with Rett syndrome – a rare genetic disease that affects brain development and causes severe disability.
“To be told that just rocked us as a family,” said dad Josh.
It was then the family were referred to CHSW’s Charlton Farm hospice in Wraxall, Somerset.
